Changing the Conversation about IDD in the Community

When it comes to community participation for people living with intellectual and developmental disabilities (IDD) and their families, they find that opportunities appearing to be tailored to them do not always match their descriptions. Anna Perng, a community activist, and Robert Smythe, a world-famous puppeteer, have seen this firsthand. Both brought their experiences with IDD to an effort to build regional stakeholder communities and a roadmap for future comparative effectiveness research, all made possible through a Eugene Washington PCORI Engagement Award.

Tweets:

“We face incredible pressures, challenges, and setbacks, and it’s not always just because of our disabilities. It’s because the world is not designed for us.” - @annaperng. https://pcori.me/3kqvvAt

How can changing the perception of intellectual and developmental disabilities make a difference in the lives of people they affect most? Learn more in this PCORI story.  https://pcori.me/3kqvvAt

Robert Smythe found success on stage. Now, learn how the world-famous puppeteer played a leading role on a PCORI-funded project aimed at breaking down barriers to community participation for people with intellectual and developmental disabilities. https://pcori.me/3kqvvAt

What changes do people with intellectual and developmental disabilities want to see in their communities to make them more inclusive places to live? Learn more in this PCORI story. https://pcori.me/3kqvvAt

What are the everyday challenges parents of children with intellectual and developmental disabilities face? @annaperng tells us in this PCORI story. https://pcori.me/3kqvvAt