Related to families advocating for more restrictive environments in Indiana it’s organized by providers, related to the CMS settings rule, and aimed at keeping
sheltered workshops and ICF/IDD group homes open. There are also families working to establish villages/farms/gated communities but they typically don’t seek government funds and their adult children do not have the most significant disabilities.
Indiana no longer has state institutions but we have group homes that are 6-8 bed ICF/ID s for about 5,000 people with DD plus about 1,000 children and adults
in nursing homes. Our Waiver homes are limited to no more than 4. It’s not clear that the people living in the ICF’s have more significant disabilities than those being served under our CIH Waiver (full service residential HCBS waiver). Because CIH Waiver
eligibility is limited to parents in their 80s or emergencies, people who want residential care for their children and don’t meet the criteria are going for group homes or in some cases nursing homes. There have been some past efforts to use Money Follows
the Person to move people out that failed. Because of Indiana’s rate structure there is some evidence that the ICF’s have more stable staff and more hours of staffing overall. Families pretty much call all residential setting group homes. They don’t really
care or understand the differences between group homes and waiver homes. To be honest I’m not sure there is that much difference to the family until they want to move and take their son/daughter to a new part of the state and find out the supports are tied
to a bed not the person. We hope to address people with more intensive support needs in a Waiver rewrite.
Hope to see you in San Diego
From: nacdd.simplelists.com listserve [mailto:xxxxxx@simplelists.com]
Sent: Tuesday, August 28, 2018 8:20 PM
To: xxxxxx@nacdd.simplelists.com
Subject: Daily digest for xxxxxx@nacdd.simplelists.com
**** This is an EXTERNAL email. Exercise caution. DO NOT open attachments or click links from unknown senders or unexpected email. ****
|
Serving individuals who have more “significant” needs - Glomb, Walter
(28 Aug 2018 13:22 EDT) |
Serving individuals who have more “significant” needs by
Glomb, Walter (28 Aug 2018 13:22 EDT)
Reply to list
Dear friends,
How many of you are engaged in fighting a growing counter-revolution by families of individuals who have more “significant” needs, e.g. individuals who are nonverbal, non-ambulatory, apparently non-responsive and require 24/7 nursing,
and are claiming that our programs do not benefit their children. They believe that their children cannot be well served in home and community based settings and that state-run institutions are the ONLY setting that can care for their loved ones. These are
not families of individuals who were placed in institutions decades ago. These are families of younger and middle-age adults who are presently living with their parents.
For a start, I am looking for vocabulary to properly describe the needs of these individuals. The parlance of the State of Connecticut uses a Level of Need (LON) scale, reducing a person to a number between 1 and 8. Otherwise the
best terminology that I have found is the definition of active treatment (AT) services that determine eligibility for Medicaid ICF/DD.
Thank you.
Walter Glomb
Director, Connecticut Council on Developmental Disabilities
460 Capitol Avenue
Hartford, CT 06106
(860) 418 - 6157