Here is what Georgia has to offer

Greetings - our Utah Health Department is seeking a guide for transition to adult health care for special health care needs young adults. Does anyone know of such a guide and would you be willing to share the website or written copy?   Thank you in advance.
Claire

--

Claire Mantonya
Utah Developmental Disabilities Council
www.utahddcouncil.org
801-533-3965
801-201-9110 - cell

Hi Claire: Please look at this series of products under the "transition to adult health care" heading

http://www.waisman.wisc.edu/cedd/products.php​

Best,

Beth

From: xxxxxx@nacdd.simplelists.com <xxxxxx@nacdd.simplelists.com> on behalf of Claire Mantonya DHS <xxxxxx@utah.gov>
Sent: Thursday, July 21, 2016 4:26 PM
To: xxxxxx@nacdd.simplelists.com
Subject: DD Councils Seeking Transition to Adult Health Care guide
 
Greetings - our Utah Health Department is seeking a guide for transition to adult health care for special health care needs young adults.  Does anyone know of such a guide and would you be willing to share the website or written copy?   Thank you in advance.
Claire

--

Claire Mantonya
Utah Developmental Disabilities Council
www.utahddcouncil.org
801-533-3965
801-201-9110 - cell

Hi Claire,

 

Connecticut Kids as Self Advocates  (Youth with disabilities ages 14-22)  wrote a series of three booklets several years ago, with a grant from the CT Department of Public Health.   You can find all of them on the CT DPH website through the following links: 

 

Moving Into Adult Health Care: What Do Young Adults With And Without Disabilities Need To Know?

Moving Into Adult Health Care: What Do Parents Need To Know? 

Moving Into Adult Health Care: What Do Primary Health Care Providers Need To Know? 

 

Molly

 

From: xxxxxx@nacdd.simplelists.com [mailto:xxxxxx@nacdd.simplelists.com] On Behalf Of Claire Mantonya DHS
Sent: Thursday, July 21, 2016 5:26 PM
To: xxxxxx@nacdd.simplelists.com
Subject: DD Councils Seeking Transition to Adult Health Care guide

 

Greetings - our Utah Health Department is seeking a guide for transition to adult health care for special health care needs young adults.  Does anyone know of such a guide and would you be willing to share the website or written copy?   Thank you in advance.

 

Claire

 

--

Claire Mantonya

Utah Developmental Disabilities Council

www.utahddcouncil.org

801-533-3965

801-201-9110 - cell

These are great Molly

Sent from my iPad

On Jul 22, 2016, at 8:25 AM, Cole, Molly <xxxxxx@ct.gov> wrote:


Hi Claire,

 

Connecticut Kids as Self Advocates  (Youth with disabilities ages 14-22)  wrote a series of three booklets several years ago, with a grant from the CT Department of Public Health.   You can find all of them on the CT DPH website through the following links: 

 

Moving Into Adult Health Care: What Do Young Adults With And Without Disabilities Need To Know?

Moving Into Adult Health Care: What Do Parents Need To Know? 

Moving Into Adult Health Care: What Do Primary Health Care Providers Need To Know? 

 

Molly

 

From: xxxxxx@nacdd.simplelists.com [mailto:xxxxxx@nacdd.simplelists.com] On Behalf Of Claire Mantonya DHS
Sent: Thursday, July 21, 2016 5:26 PM
To: xxxxxx@nacdd.simplelists.com
Subject: DD Councils Seeking Transition to Adult Health Care guide

 

Greetings - our Utah Health Department is seeking a guide for transition to adult health care for special health care needs young adults.  Does anyone know of such a guide and would you be willing to share the website or written copy?   Thank you in advance.

 

Claire

 

--

Claire Mantonya

Utah Developmental Disabilities Council

www.utahddcouncil.org

801-533-3965

801-201-9110 - cell

Good Morning colleagues

The Maine Council recently funded a small grant worked with a parent to develop a paper/web based tool that families could use to help them select a community service provider. Then we worked with the self- advocacy organization to produce this video for individuals. It’s pretty awesome:

 

https://www.youtube.com/watch?v=m9MNXBI7s6o

 

 

 

Rachel Dyer

Associate Director

 

 

Maine Developmental Disabilities Council

     - promoting full inclusion for people with developmental disabilities

225 Western Ave, Ste 4

Augusta, ME  04330

207-287-4221  800-244-3990

www.MaineDDC.org

xxxxxx@Maine.gov

 

Rachel,

 

Thank you for the link to the video.  I really enjoyed watching it.

 

JBIII

 

John Block, III

Executive Director

NM Developmental Disabilities Planning Council

625 Silver Avenue SW, Suite 100

Albuquerque, New Mexico 87102

Office:  (505) 841-4575

Cell:  (505) 670-9552

 

From: xxxxxx@nacdd.simplelists.com [mailto:xxxxxx@nacdd.simplelists.com] On Behalf Of Dyer, Rachel M
Sent: Friday, July 22, 2016 7:51 AM
To: xxxxxx@nacdd.simplelists.com
Subject: DD Councils friday morning good news

 

Good Morning colleagues

The Maine Council recently funded a small grant worked with a parent to develop a paper/web based tool that families could use to help them select a community service provider. Then we worked with the self- advocacy organization to produce this video for individuals. It’s pretty awesome:

 

https://www.youtube.com/watch?v=m9MNXBI7s6o

 

 

 

Rachel Dyer

Associate Director

 

 

Maine Developmental Disabilities Council

     - promoting full inclusion for people with developmental disabilities

225 Western Ave, Ste 4

Augusta, ME  04330

207-287-4221  800-244-3990

www.MaineDDC.org

xxxxxx@Maine.gov

 

Hello all –

 

For those of you relatively new to DD Council world, the former director of the Connecticut Council always entertained us and provoked thought on Friday afternoons – especially during State Plan and PPR season.  So here goes….

 

I’m catching up on some web research today and have just followed-up with two groups that I think could really support our work and the people/families for whom we advocate.

 

Some months ago, NBC News did a story on a woman with MS who had designed and developed a website that could (a) host blogs from people who had MS; (b) allow people who blogged to “track” their emotional state from post to post; (c) allow bloggers to connect with other bloggers to provide some peer support.  Now, in addition to MS, the site serves people with mental health diagnoses and veterans.  It’s called MyCounterpane.org and the website invites people who represent “other” communities to make a pitch to add new populations on the site. I’ve officially asked.  Take a look- it seems easy to use and pretty cool. 

 

The other site is Lady Gaga’s Born This Way Foundation. It targets youth and young adults. Like My Counterpane, you can blog there.  It also is currently conducting research about youth and young adults with “issues” (and I’ll just use that word broadly) and they are actively seeking youth and young adult input into this survey.  I’ve seen blogs and resources for people who experience body image issues, bullying, mental health diagnoses, LGBTQ issues, abuse, etc.

 

I don’t have a full vision for either website, but Oklahoma is part of the Community of Practice on Supporting Families – and we’ve been talking amongst ourselves about engaging youth, so I think there might be something here for us.

 

Take a look!

 

Ann Trudgeon

Oklahoma Developmental Disabilities Council

2401 N.W. 23rd Street, suite 74

Oklahoma City, Oklahoma 73107

xxxxxx@okdhs.org

405-521-4966

405-521-4910 (fax)