Wednesday, and that means it’s time for a roundup email. Here are important things that have crossed NACDD’s attention and of course, Erin Prangley’s excellent slides:
IEC – Institute for Exception Care is the newest organization to be established to address healthcare issues for people with I/DD. IEC’s CEO is Hongmai (Mai) Pham, MD, MPH and mother of a son with autism. This new organization, based in
Washington, DC (out of the offices of The Arc of the US) is dedicating to improving healthcare and addressing equity. Below is a great piece they had on NPR last weekend! – Donna Meltzer
Families of kids with autism navigate a maze of barriers to find support : Shots
- Health News : NPR
We’re still looking for State Captain Volunteers! As a reminder, here’s what this is all about:
Hello EDS!
Hi everyone—the 2022 Disability Policy Seminar (DPS)
registration is open and we are excited about providing a hybrid event with virtual Hill visits. To help organize the Hill visits, I am asking DD Councils (staff or ED or member) to volunteer to be a “state captain.” Please let me or know if you, or staff
from your chapter, are interested in becoming a state captain. Below is additional information about the virtual visits and the state captain program. You do not have to be attending DPS in-person to be a state captain.
About DPS Virtual Hill Day
Due to the hybrid nature of the event this year and the unlikelihood of in-person Hill visits, we will need to be flexible about scheduling the virtual hill visits. If possible, the in person attendees and virtual attendees will participate together in the
virtual Hill visits. The state captains should aim for scheduling the virtual meeting between March 30 and April 6th. You will play a vital role in bringing advocates from your state together to have a unified presence and consistent messaging
at Hill meetings.
The virtual meetings are an opportunity for DPS participants to virtually engage with their Members of Congress and staff and advocate for important policy initiatives. All DPS participants will be invited to participate at the time
of registration and in subsequent communications by the DPS planning committee. State delegations and meetings will be organized and facilitated by State Captains with support from the DPS Hill Day work group. We hope to have 1-3 volunteers per state to share
the work and the DPS partner organizations are asking their members and chapters to volunteer.
State Captain Program
DPS will rely upon State Captains to organize the state delegations and set up the virtual Hill Day appointments. State Captains are volunteers who will assist other DPS registrants from their state in making appointments with their
legislators, preparing for, and participating in the 2022 DPS Virtual Hill Visits. They will play a vital role in bringing advocates from their state together to have a unified presence and consistent messaging at Hill meetings. I have attached the state
captain packet to provide you with additional information about the program and sample language you can use if you agree to be a state captain. We will hold a zoom meeting in February to answer any questions—more details to follow.
Further details in the “2022 State Captain Packet final.docx”attachment.
Updates from AUCD/NCRN National COVID Resiliency Network; Newsletter No. 10 February 2022:
Dear Colleagues,
The first month of the new year has swept by us! We still need participants for the
NCRN
Communications study. Our results will help provide effective and accessible communication materials about COVID-19 vaccines for people with Intellectual and Developmental
Disabilities (I/DD). Please contact xxxxxx@gsu.edu
to sign up today! Our work does not stop here. We are collaborating with the
National COVID-19 Resiliency
Network (NCRN) on a future event!
We bring you updated resources like accessing free COVID-19 at-home tests and disability-related news from our network and other organizations.
Opportunities from NCRN
COVID-19 Communications Study
As part of its work with NCRN, AUCD is doing a study to test COVID-19 vaccine ads to make sure they are accessible and
useful to all. This study is an online survey that tracks your eyes when
you are looking at an ad. This study will be done on a computer or laptop that has a camera.
If you are interested in participating in this study and are a person with an intellectual or developmental disability between
the ages of 18-24, please email Ashley Jacinth-Salmon to learn more at xxxxxx@gsu.edu.
AUCD Efforts with the
National COVD-19 Resiliency Network
Vacunda? Vacundo? Vacundx?
As part of its work with NCRN, AUCD invited network members to participate in NCRN's Regional Community Coalition (RCC),
which were meetings held to build partnerships among regions across the U.S. Robin Shaffer from Georgetown University Center for Excellence in Developmental Disabilities (UCEDD) shared a story on addressing the needs of the community through inclusive language.
Read the full story here!
Resources
|
FREE COVID-19 Rapid Antigen Tests |
|
This program will ensure that Americans have at-home, rapid COVID-19 tests available. To ensure broad access, the program will limit the
number of tests sent to each residential address to four (4) tests. These tests will usually ship within 7-12 days of ordering. Quick Facts:
·
Tests are rapid antigen at-home tests, not PCR
·
They are also referred to as self-tests or over the counter (OTC) tests
·
Can be taken anywhere
·
Give results within 30 minutes (no lab drop-off required) Click here
for answers to more FAQ's. |
|
Center for Dignity in Healthcare for People with Disabilities |
|
Loss and COVID-19: The Toll on Children | Tracy Waller Esq., MPH | January 26,2022 | Read the
full article |
|
Vanderbilt University Center for Excellence in Developmental Disabilities (UCEDD) |
|
Vanderbilt Kennedy Center produces videos on COVID-19 vaccine and intellectual disability |
December 19,2021 | Read the full
article |
|
National Association of Community Health Center (NACHC) |
|
Fewer COVID-19 Deaths and Infections in Areas Where There is a Community Health Center |
January 11, 2022 | Read the full
article |
|
Morehouse School of Medicine National COVID-19 Resiliency Network (NCRN) |
|
Amerigroup Georgia Funds $50,000 in Grant Sponsorship to MSM National COVID-19 Resiliency Network (NCRN) Rural Community Health Technology
Mobilization on | December 17,2022 | Read the Press Release Report on African American and Hispanic/Latinx Focus Group |
April 1,2021 | View full
report |
Denise M. Rozell
Director of Policy Innovation
Association of University Centers on Disabilities (AUCD)
1100 Wayne Ave., Ste 1000
Silver Spring, MD 20910
Direct: 240-821-9465
Cell: 301-787-6814
Connect with AUCD
And that’s it for the roundup. You can expect another one next week. As before, any questions, comments, cares, or concerns, please direct them to the email below.
Eric Berg
Executive Assistant
NACDD
National Association of Councils on Developmental Disabilities
NACDD.ORG